神经纤维瘤病累及神经等系统，多方呼吁推动创新疗法可及

新京报05-18

新京报讯（记者王卡拉）在世界神经纤维瘤病关爱日到来之际，以“无‘纤’生命，恰逢此刻”为主题的公益科普活动在京举行。活动聚焦1型神经纤维瘤病（NF1）成人患者群体，汇聚权威专家、企业代表、患者及媒体等多方参与，通过科普活动、主题展览与深度对话，呈现NF1成人患者在疾病、生活与社会融入中的多重挑战，以及亟待满足的治疗需求，呼吁推动创新疗法可及，助力患者重拾信心，回归社会。本次活动特别打造主题患者故事展...

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